Please wait...Welcome
I was born on September 21, 2012
with Spinal Muscular Atrophy of the first type, but my parents learnt this eleven months later. Since then, they do all kinds of exercising with me. What do I say to them? "Don't do!"
Any other illness is dangerous for me because I do not have enough strength to overcome it. When I have a cold, I am not strong enough to expectorate effectively. Luckily, I have still enough strength to be able to swallow and breathe by myself. Browse through my website and set up RSS feeds be in the picture!
New videos about SMA were released.
News
11/07/2015 22:44
Colorado a Utah
We are flying home in less than a week. Sometimes I look forward to it,...
05/07/2015 06:55
The journey to Kansas City
It all started at the airport near my Zbuzany, from where we set up for...
25/05/2015 22:00
Hiiiiii
Quite a lot has happened in the past weeks, mainly I had a cough for almost three weeks, so...
25/05/2015 21:58
I have all three assistive devices at home thanks to Zivot detem foundation.
My dad improved the...
26/04/2015 23:01
Three amazing fundraising events were held in April. One of them was a Krav Maga workshop in Ceska...
03/04/2015 18:25
Hiiiiiii!!!
We have several great news!
We received a wonderful car-seat through Zivot detem...
05/03/2015 00:07
Great-grandmom´s funeral, a nice present and preschool
At the end of February Bozhenka´s...
19/12/2014 23:38
A few days ago we put together the power wheelchair Koala for Bozhenka! We would like to thank very...
16/11/2014 00:09
ZTP/P card: Last week we got the ZTP/P (severe health disability / needing special assistence)...
13/11/2014 00:40
On Monday we were released from hospital, where we spent almost a week fighting pneumonia. It was...
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